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Part 1: Home based family caregiving at the end of life: a comprehensive review of published quantitative research (1998 - 2008)

Stajduhar KI, Funk L, Toye C, Grande GE, Aoun S, Todd CJ

Palliative Medicine. 2010;24(6):573-593.

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Abstract

The changing context of palliative care over the last decade highlights the importance of recent research on home-based family caregiving at the end of life. This article reports on a comprehensive review of quantitative research (1998–2008) in this area, utilizing a systematic approach targeting studies on family caregivers, home settings, and an identified palliative phase of care (n = 129). Methodological challenges were identified, including: small, non-random, convenience samples; reliance on descriptive and bivariate analyses; and a dearth of longitudinal research. Robust evidence regarding causal relationships between predictor variables and carer outcomes is lacking. Findings suggest the need for knowledge regarding: family caregiving for patients with non-malignant terminal conditions; whether needs and outcomes differ between family caregivers at the end of life and comparison groups; and caregiver outcomes in bereavement. Clear definitions of ‘family caregiving’, ‘end of life’, and ‘needs’ are required as well as greater application and testing of theoretical and conceptual explanations.

Bibliographic metadata

Type of resource:
Content type:
Publication type:
Publication form:
Published date:
Journal title:
Volume:
24
Issue:
6
Start page:
573
End page:
593
Digital Object Identifier:
10.1177/0269216310371412
Access state:
Active

Institutional metadata

University researcher(s):

Record metadata

Manchester eScholar ID:
uk-ac-man-scw:101250
Created by:
Body, Stacey
Created:
20th December, 2010, 15:47:43
Last modified by:
Body, Stacey
Last modified:
30th March, 2012, 08:58:46

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