In April 2016 Manchester eScholar was replaced by the University of Manchester’s new Research Information Management System, Pure. In the autumn the University’s research outputs will be available to search and browse via a new Research Portal. Until then the University’s full publication record can be accessed via a temporary portal and the old eScholar content is available to search and browse via this archive.

Related resources

Full-text held externally

University researcher(s)

Withdrawing from research: a rethink in the context of research biobanks.

Holm, Søren

Health care analysis : HCA : journal of health philosophy and policy. 2011;19(3):269-81.

Access to files

Full-text and supplementary files are not available from Manchester eScholar. Full-text is available externally using the following links:

Full-text held externally

Abstract

It is generally assumed in research ethics that research participants have an unconditional right to withdraw from research without any detriment or reprisal. This paper analyses this right in the context of biobank research and argues that the traditional shape of the right in clinical research can be modified in biobank research without incurring significant ethical cost. The paper falls in three parts. The first part is a brief explication of the philosophical justification of the right to withdraw. The second part presents a number of extant criticisms of the right. And the third and final part argues that although a right to withdraw is crucial in relation to biobank research, such a right has to be specified in a different way to the similar right in relation to clinical research.

Bibliographic metadata

Type of resource:
Content type:
Publication type:
Author(s):
Published date:
Abbreviated journal title:
ISSN:
Place of publication:
Netherlands
Volume:
19
Issue:
3
Pagination:
269-81
Digital Object Identifier:
10.1007/s10728-011-0194-8
Pubmed Identifier:
21918887
Access state:
Active

Institutional metadata

University researcher(s):
Academic department(s):

Record metadata

Manchester eScholar ID:
uk-ac-man-scw:143957
Created by:
Holm, Soren
Created:
3rd January, 2012, 15:56:14
Last modified by:
Holm, Soren
Last modified:
3rd January, 2012, 15:56:14

Can we help?

The library chat service will be available from 11am-3pm Monday to Friday (excluding Bank Holidays). You can also email your enquiry to us.