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“How do young adults experience and understand the impact of growing up with a sibling with cerebral palsy within the Kenyan context?”
[Thesis]. Manchester, UK: The University of Manchester; 2016.
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Abstract
The study explored the experiences of young adults who have a sibling with cerebral palsy living in Nairobi, Kenya in order to establish how they made sense out of the experience of growing up with a sibling with CP. The study used a qualitative approach with an Interpretative Phenomenological Analysis (IPA) whereby six participants all young adults aged between eighteen and twenty four years, were interviewed using semi-structured interviews. Data analysis was undertaken according to IPA guidelines. The findings generated four super ordinate themes namely: increased sense of reward, emotional impact, family relationships and public relations. The findings revealed that there was a direct impact on sense of psychological well-being both negatively and positively. On one hand, the young adults experienced feelings of stigma, fear about the future, anger and a sense of responsibility. While on the other hand they experienced personal growth in terms of a sense of personal development and some concrete rewards. In conclusion, the study demonstrated the potential for personal development in the group studied and made a contribution to understanding the disabling impact of society on the lives of sibling due to disability by association.